Tag: oi
member name: Holly J.
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October 20, 2007 06:23 PM EDT --
If I could tell medical professionals anything about OI
Listen to the patient. Don’t assume that what you have learned about the OI is true for all people with OI. That would be like someone . . .
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October 20, 2007 06:27 PM EDT --
Other then the general non-education of others about it....
For me, it hasn’t even been the big (obvious things) like breaking or anything. I can get around that. I accept . . .
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September 13, 2007 02:07 PM EDT --
OI is short for osteogenesis imperfecta. Osteogenesis imperfecta (OI) is a rare genetic disorder characterized by bones that break easily, often from little or no apparent cause. For us that have it, this . . .
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September 13, 2007 01:35 PM EDT --
A glossery of terms relating to the O.I. community. Copyed from the Oif.org website
Actonel
Aa drug in the bisphosphonate family. It is the tablet form of the drug risedronate. It . . .
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September 13, 2007 02:44 PM EDT --
False accusations of abuse may be made towards people living with someone who has OI. This causes a lot of unnecessary stress on families, and is often hard to prove unless there is documentation of a . . .
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September 13, 2007 01:31 PM EDT --
This is information that I copyed from the oif.org website. It's a great website with lots of information about O.I. if you didn't know, and its ran by the O.I. foundation.
Fast Facts . . .
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